Terms of Use
Effective Date: 2025
Welcome to the website of VOICES FOR THE RARE, a nonprofit organization recognized as tax-exempt under Section 501(c)(3) of the Internal Revenue Code (EIN: 41-2972544).
By accessing or using this website, you agree to comply with these Terms of Use.
Website Use
This website is provided for informational, educational, and charitable purposes only.
No Medical Advice
Content is for educational purposes only and does not constitute medical or legal advice.
Donations
Contributions are tax-deductible to the extent permitted by law. No goods or services were provided in exchange for donations unless stated.
Intellectual Property
All content is the property of VOICES FOR THE RARE unless otherwise noted.
Limitation of Liability
VOICES FOR THE RARE is not liable for damages arising from use of this site.
Contact
Email: info@voicesfortherare.org
Terms & Conditions
These Terms & Conditions govern use of the VOICES FOR THE RARE website.
Acceptance
By using this website, you agree to these terms.
Third-Party Links
We are not responsible for content on third-party websites.
Modifications
Terms may be updated at any time.
Transparency Statement
VOICES FOR THE RARE is committed to transparency, accountability, and ethical stewardship.
Mission
We advocate for individuals and families affected by rare diseases through education, access, and advocacy.
Financial Stewardship
Funds are used to support programs, advocacy efforts, and organizational sustainability.
Governance
The organization is governed by a Board of Directors providing fiduciary oversight.
Public Accountability
IRS determination letters and Form 990 are available upon request.
Donor Privacy
We do not sell or share donor information except as required by law.
Arizona Charitable Disclosure:
A copy of the official registration and financial information for VOICES FOR THE RARE may be obtained from the Arizona Corporation Commission by calling 800-458-5842 or visiting www.azcc.gov. Registration does not imply endorsement.
Use of Images & Media
Voices For The Rare uses images and visual media on this website to help illustrate our mission, values, and the communities we serve.
Image Disclosure:
Images used on this website are representative and do not depict actual clients, patients, or families unless otherwise stated.
We are committed to protecting the privacy and dignity of individuals affected by rare and complex medical conditions. When real stories or experiences are shared, they are done so with permission or are clearly identified.